For Patients

Resources for Patients

OCHIN’s Patient Engagement Panel

Patients offer important opinions and suggestions regarding health care, as well as experience and information from the patient perspective. The Patient Engagement Panel (PEP) ensures that patient voices are heard. PEP members work with policy makers, providers and researchers to improve patients’ health care experiences. The PEP works together with healthcare information technology and researchers to build better research studies and help people live healthier lives. PEP members gain insight and understanding of the research process and what sort of research is taking place in their doctor’s office. PEP members also help OCHIN present research findings to patients, caregivers and patient communities in an accessible way.

Patient Engagement Panel – Meeting Archives and Resources:

Meeting Archives (give a current example from last meeting)

PEP Poster

PEP By-Laws

PEP Email Template

PEP Glossary

Patient Engagement Panel Highlights:

Lessons Learned from Developing a Patient Engagement Panel: An OCHIN Report

 

Engaging Patients to Inform Community Health Research within a Practice-Based Research Network

OCHIN Patient Engagement: Strategies for Patient Portal Adoption

Guiding Research and Policy to Improve Healthcare for Everyone

Setting the Stage for Patient Involvement: Connecting Patients with Periodontal Disease

 

Other Highlights of PEP members

 

OCHIN’s Patient Engagement and Meaningful Use Resources

What is Patient Engagement?

Meaningful Use Patient Engagement Resources

Patient Engagement Summit- HIMSS

 

Training Resources

National Institutes of Health (NIH) Training – Protecting Human Research Participants

Public Health Foundation’s TRAIN Learning Management System (LMS)

Healthwise

 

Additional Resources

Patient Engagement in Research: A Systematic Review

Patient-Centered Outcomes Research Institute (PCORI): What We Mean by Engagement

PCORI Engagement Rubric

Healthcare Information and Management Systems Society (HIMSS) – Patient Engagement Toolkit

Agency for Healthcare Research and Quality (AHRQ) – Guide to Patient and Family Engagement

Institute of Patient and Family-Centered Care – Patient and Family Engagement Strategies and Definitions

Health IT Buzz – Consumer Engagement Blog

 

For More Information on the Patient Engagement Panel

For more information, please email Nate Warren, Patient Engagement Coordinator at OCHIN at warren@ochin.org